Everyone may not understand the reference to boxing, but everyone will agree that we have days that are easy and days that are tough and that we always need to be ready for whatever comes. Gels are training gloves, I need those for days when it seems like things are okay. The gels provide some light support for my hands and wrists while also giving me a sense of safety that I can do what needs to be done without injuring myself or my partner. The heavy gloves are regular boxing gloves with support and protection for me that allow me to hit harder and faster. I can fight back with all my strength and not worry about the consequences. These are for those days when PD is coming on strong and I need to punch back to keep it at bay.

What does a “gels” day look like for us? Those are the days when my husband gets up and is able to take his time with breakfast and dressing. We may have some light chores or house projects and he is able to help me with them. We both have things to do and our day seems purposeful and positive.

What can bring out the heavy gloves? There is always a low level of concern or caution when living with someone who has a chronic illness. I listen for unexpected or unusual sounds, and watch for things that are out of the ordinary for him. He may ask for help or I may hear him struggling with a task that was easy yesterday. He may seem frozen or especially quiet. Or, life may have taken a turn and we may be facing some unexpected external challenges. Whatever it is, I keep those heavy gloves close and ready for the next round in this ongoing match with PD.