Each day brings something new on this journey. There is no smooth and clearly defined progression of symptoms for people with Parkinson’s and the disease presents differently in every person with the diagnosis. I do know that we will have good days and bad days, I don’t know why or when they are coming, only that they will. I also know that whatever we are seeing now will probably get worse at some point, I just don’t know when.

I have read about the progression of Parkinson’s Disease and looked at the different future pathways we may face, not knowing what is coming, only that something will. I have considered the decisions we, or even I, may have to make one day in caring for my husband and wish that I had a crystal ball so we could be prepared.

I could live my life worrying and anticipating what is coming but instead I choose to enjoy what is right now. Yes, we deal with tremors and rigidity, yes life has slowed down, but we are still here. I will work each day to stay present for my husband and myself so that we can have a life that is worth living. Then, when the next thing comes, we will be ready and face it together.