Modifications, just the word is scary. Will we have to remodel or even move to a different home? What about mobility, will my husband need a walker or even a wheelchair someday? Can we continue sleeping in the same bed or do we need to look at a different arrangement? What about bathing, is our shower safe for him? What is going to come as his symptoms progress and how can we plan for it?

Simplifying your home and your life now can help eliminate many daily struggles and open the door to additional modifications that might come later. If you have access to an occupational therapist through your husband’s medical team, take advantage of them and ask your questions.  I know that I often look for the worst to happen when in reality solutions are much simpler and available. There is also a great tool called the Parkinson’s Home Safety Checklist, put together by the Davis Phinney Foundation and available on their website at  https://www.davisphinneyfoundation.org/landing-home-safety/.

Remember, when you are thinking about modifications, the conversation needs to be with your partner and it needs to be realistic. Make sure that whatever you plan will work for both of you and that you look at all alternatives. Don’t be afraid to try different things before committing to the final solution, you may find a workaround that is just as effective for your situation. And, finally, remember that any modifications are meant to make the journey easier for both of you. Your ability to adapt to the new system is as important as theirs, make sure it works for you too.