I was once part of a 12-step program called Families Anonymous where I learned the mantra “keep coming back, it works if you work it.” I also remember the saying “everything worth having is worth working for”. These two mottos apply to so much in my life, but especially to my relationship with my husband.
As the symptoms of this disease progress, it can become more difficult to see the people you both were when you first fell in love. My husband and I have aged and with that we have more normal aches and pains. PD has also brought stiffness, awkward movements, and mobility issues into the picture. It is difficult to keep smiles on our faces when everything seems to be working against us.
We have found that we can give in to the negativity and be miserable together or we can do our best to overcome the challenges. We know that exercising together can alleviate much of the achiness and loosen stiff joints so we walk at least a mile everyday. We also take time for a morning cuddle which helps us start our day on a positive note. We are no longer spontaneous with our lovemaking but we do still plan for special times, date nights if you would. Some days we find we are just sitting together quietly holding hands or looking at old photos.
This disease has brought us many things but not all of them have to be unpleasant. Yes, it is impacting our roles as husband and wife, but it will not take away the love we share. I will always remember that caring is the most important component I, as a loving partner, bring to this role and treasure all the moments we have.