I am spending extended times with my husband, something I dreamed of when I was still working, but that I am now finding can become exhausting. It is tough to always keep a smile on my face and a positive attitude, to try to be patient when, honestly, there are times when I want to scream. Then, I feel guilty for having those negative thoughts. It is tough to take on additional duties when I already have a full plate, but I do them because my husband can’t anymore and they must be done. It is tough to watch the person I love struggle so valiantly against this disease and still see progression of his symptoms on an almost daily basis. 

It is wonderful, however, to wake up in his arms every morning. It is relaxing to take walks together as we both enjoy the outdoors. It is delightful sharing meals and conversations. So many components of “us” are still present that I can often put aside the challenges of PD to enjoy the amazing man I married.

There are times though, when things just get too crazy. This is when I have learned to give myself permission to take a break. It may be for an hour as I read a good book or play in the garden. It may be for longer as I go shopping or out for a walk with a friend. I have a journal that I write in everyday which is a lifesaver for me. These little escapes are my release valves that allow the pressure to dissipate and give me peace. Afterwards, I always find myself refreshed and ready for another interesting day with my husband.