Your journey as a Parkinson’s CarePartner will take unexpected turns as your partner’s illness progresses. Try to remain flexible in your responses to see where it leads.

But what about when it unexpectedly takes a turn for the better?

My husband recently had Deep Brain Stimulation Surgery (DBS) and the surgeon told us that it would be like he had gone back five years in his disease, I didn’t believe him. Fortunately, he was right, it is like we have made a u-turn in our journey or are on a totally separate track now. My husband’s tremors are greatly reduced and he is more mobile that he has been in years. The changes that the surgery brought are amazing.

The challenge I now face is to accept this new normal. I told him the other day that I almost feel displaced, it’s like he doesn’t need me anymore. We are both having to figure out just what he can and cannot do and when he might still need my help. While I am thrilled by his reemerging capacities, I am struggling with adjusting my support and trying to understand where it is going next. Instead of worrying about whether he can do something, I worry about whether he should. Will the changes stay? What comes next?

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