Being a Parkinson’s CarePartner can be a lonely life. We are asked to do so much more than we ever expected and our partners may or may not be present in the moment to share the tasks with us. Their physical and sometimes cognitive or emotional challenges takes them away just when we need them the most.

I belong to several support groups that are there just for me as a Parkinson’s CarePartner. These meetings of likeminded partners bring me a sense of belonging and peace that I don’t find in other settings. Sharing with other people facing similar situations is so encouraging and often gives me positive pointers that help me make it through another day. We talk, we laugh, sometimes we cry but most importantly we connect. These friendships bring a life affirming component to an otherwise challenging role.

In addition to my Parkinson’s groups, I try to maintain friendships outside the PD world. This can be a bit more challenging as my schedule as a CarePartner doesn’t allow for a lot of free time, but I feel it is worth the effort. Spending time with other people who bring a broader perspective helps me stay open to the world and reminds me of who I am outside the walls of our home. And, it reminds me that it’s okay to have fun with and without my Person with Parkinson’s.