Sometimes it isn’t even the care plan, it may be the interaction in the appointment itself that isn’t okay. And it may not be the doctor who isn’t understanding, it may be the nurse or others you first encounter. We had a difficult experience recently with a nurse’s aide who was refusing me admission to his appointment. To help the process along, I have written the following introduction for my husband to share with new providers. He agrees that it is a good idea.  

“I have Parkinson’s Disease. One of the symptoms of this illness is a condition called Bradyphrenia which causes my brain to process information slower, especially in stressful situations such as medical appointments. This can impact my ability to hear, understand and retain information from the doctor. My speech has also been changed by this disease which makes communication difficult. I have difficulty dressing and need help if any clothing is to come off for the examination.

My wife is my CarePartner, a vital member of my care team, and it is important that she be allowed to accompany me to appointments so she can know what is said and can support me during the appointment and in any treatment diagnosed.”

Our plan is for both of us to sign this and provide it when new appointments are made so the office has a chance to review and understand the situation. Then, on the day of the appointment, we will also bring a copy with us and present it to the receptionist. I hope it helps.