I write a lot about what needs to be done when caring for someone with PD and thought today I should step back and say that just as all of our People with Parkinson’s have unique reactions to their diagnosis, we all respond in unique ways. My journey will be based on the needs of my husband, on our life situation, on our medical team. I wish there were a manual that could fit every possible scenario but PD keeps writing new twists everyday. I just need to be as prepared as I can for whatever pops up.

My husband’s PD creates physical challenges for him including tremors, gait, and swallowing. While he does seem to be impacted by “sundowners” every afternoon, he doesn’t have hallucinations, he just feels cold and tired. I am most often called upon to help him dress or take care of other personal hygiene needs. When I hear stories of having to deal with certain cognitive issues from my fellow CarePartners, I am thankful that we are not dealing with those things at this time. Yet, who knows what the future might bring?

While we are not all facing the same challenges, we are all fighting the same disease. There will always be universal things we need to support as we care for our People with Parkinson’s.  We need to encourage them to eat well, take their medications, and exercise their bodies. And we always need to remember that whatever challenges we face, it is not their fault. My husband is not in control of this disease he is simply trying his best to manage each and every day. Any support I offer must be grounded in his needs and lovingly reflect my understanding of that.