When we get together with family and friends over the holidays, I am tempted to open up and talk about Parkinson’s and the impacts it has had on our lives. I want to share the trials and help them understand what is happening. But then I remember it is not my story to tell. As a Partner on this journey, it is not my place to disclose what is happening to him because that would be a breach of his privacy and could seriously impact our relationship.

Since my husband has disclosed his diagnosis to most of our friends, it is okay for me to be open about the challenges his diagnosis brings to my life as long as I don’t become totally engrossed. It is important that I not try to speak for my husband, he has his own voice and needs to use it, but speak from my perspective. I also need to remember that there are positives that go along with this diagnosis and always emphasize those as well.

What else can I share? I can talk about things I am doing in support of my husband without bringing Parkinson’s into the discussion. I can ask advice on gardening, I can talk about local events, I can have a normal conversation and let PD go for the day. I can take some time to be me, the person who is here when the CarePartner isn’t.