Our days are pretty structured, not something I really expected in retirement, but it works for us. Most days we are up around 8, have breakfast, take care of morning routines, lunch between 11 and 12 then rest for an hour before exercising at 1. Our afternoons are when I usually take care of chores, both inside and outside of our home. I try to schedule all of our medical and other appointments in the afternoon as that tends to coincide with my husband’s medication cycle. I volunteer 2 afternoons a week and he is able to stay at home alone and be safe. Our evenings include dinner around 6, then some quiet time before tv programs and bed at 11ish.

Having outlined my day, I can now look at the areas where I am normally asked for help. My husband prepares his own breakfast, toaster waffles or a microwave meal and orange juice, I plan and prepare our other meals. I help him with his socks when he is dressing, for whatever reason they seem to be the most difficult clothing item for people with PD. I handle most of the household chores, he helps me fold laundry, vacuums and helps empty the dishwasher when asked. I take care of his personal grooming details on an as needed basis including preparing for bed at night. I exercise with him on an almost daily basis, encouraging him to give it his all to slow the progression of his PD. Mostly, I am here in case something happens and he needs me.

It may seem that my day focuses mainly on my husband and his diagnosis, however I am still able to find time for myself. Every morning, while he is in the next room showering and preparing for his day, I can be at my desk writing. I am close enough to hear what is happening, yet still able to pursue my own interests. While he naps after lunch, again I have some quiet time when I can read or check in with the world. And, as I mentioned above, afternoons are usually good times during the day for him to be alone. I can be outside working or I can leave the house for a few hours and know that he will be safe. There will always be times when it feels like things are tipping more to care for my husband than myself but overall, I think I have a good balance and hope to maintain it as we move further along in our journey with PD.