So much has changed in my relationship with my husband. Some changes were small and happened over a long period of time, others happened rather quickly as the result of a particular event. Responsibilities have shifted, needs have grown, symptoms have progressed. I knew it would happen, I am not sure I was prepared for the reality of it all. Perhaps that is just the way things are when the one you share your life with is diagnosed with a chronic disease.

When I look back on our journey it is with curiosity, not regret. I find myself wondering how we got to this place and where we will be going next. Many activities we used to do are gone and others have taken their place. We are not where either of us expected to be at this point in our lives, yet our relationship is still strong and vibrant. Our moments of intimacy look very different and yet still we manage to come together and share in the fulfillment of our love.

Morning cuddles, holding hands, touches as we pass, quick kisses just because, private jokes, candlelight dinners, afternoon aperitifs. We seek out new ways to share our feelings when the old ones become too difficult. The challenges of caring for someone I love will always be there, it is essential that I make sure the rewards are too.