The Parkinson’s community is larger and stronger than many of us realize and includes many wonderful and welcoming people. You never have to travel this journey alone.

I first learned this concept when I finally found the courage to reach out to a local support group. My contact was a phone call to one of the facilitators, a gentleman who had been diagnosed with Parkinson’s a few years earlier. He explained that he and his wife led a monthly group and shared some of his story while encouraging us to come to the next meeting. He assured me that we would be welcomed and that we would find good support and ongoing resources. We spoke for almost 10 minutes during that call and I understood that I had found someone who could help both of us as we faced uncertain and difficult times ahead.

When we got to the meeting, his smile was warm and welcoming as he brought us in and introduced us to his wife and then to a few others in the room. His Parkinson’s symptoms were mild yet visible; some of the others around us appeared further along in their journeys. It was obvious that we had found ourselves in the midst of a like group of people. I was so thankful that I finally gathered the courage to reach out because it was obvious these folks would have much to offer us. It actually felt like we had found a new family.

These memories are close to my heart today as this lovely man passed in his sleep last week. His contributions to the local PD community were so valuable. I hope his journey ended peacefully and that he knew how much he meant to so many of us. Rest in peace my friend and know that you helped us connect with a lifeline on this journey. You will not be forgotten. 

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