There is a wall behind my computer desk that has a picture of me from about five years ago when I did a local zipline tour. I am standing on a suspension bridge that is part of the tour and have both my hands out as if I’m celebrating. It’s a great reminder for me that I am braver and more capable than I ever give myself credit for. It also represents something I did successfully on my own. My husband, who has always been afraid of heights, was waiting for me at the head of the trail. Looking at it makes me smile.

Next to the picture is a copy of the first contract I received for my writing. It’s for a silly poem that I created earlier this year that was accepted by an on-line literary journal. It’s the first official document that refers to me as an author, not a small accomplishment for someone who only writes as a hobby when she has time. The most important thing about these two items is that they have nothing to do with my husband’s diagnosis and represent me as a person, not as a CarePartner.

Parkinson’s Disease is only one piece of my life, not the entirety. I sometimes forget this when caught up in the throes of caregiving. My success wall helps me remember that I have to be here for my husband but I need to be here for myself. One more note posted up there says “PD may be coming along on my journey, but today it’s taking a back seat.” A very good reminder for those times when I am feeling overwhelmed. Even though caring for my husband can be consuming at times, I am still the woman he fell in love with all those years ago. It’s vital for both of us to reconnect with that reality at times.