We belong to a monthly support group that is sponsored by our local Parkinson’s organization. It was our first real connection with the local PD community and has been a great resource for us on this journey. At our last meeting one of the newer members mentioned that she enjoyed our meetings especially when they were “fun”. She particularly mentioned our recent holiday event with a sing along. We made sure to leave time for everyone to check in but the focus at that meeting wasn’t just on PD, it was on having a good time.

The primary support group that we are a part of tends to be more structured. A fellow CarePartner and I decided we needed something more and started a monthly breakfast gathering. We split the couples up, sending our hubbies to another table. It opens the door for different conversations and they always complain that we laugh too much. Finally, when some of us still wanted more opportunities to connect we added a monthly “Happy Hour” at a local brewpub. It is easily accessed and serves non-alcoholic drinks for those who want it and they have great snacks. There is no agenda and we leave the PD talk at the door.

Parkinson’s is a very isolating illness. My husband doesn’t socialize at all unless it is with family or at these pre-arranged Parkinson’s gatherings. I believe it’s because he recognizes this is a safe place where people accept and understand the challenges he faces. He has a chance to interact with people other than me or his caregiver. It is a great way for us to bring back some of the fun.