It’s Thursday morning at 9 am and I haven’t even started writing my blog for today. I usually have a draft by Wednesday afternoon so my husband can review it for me, he has been my second set of eyes since I started writing. My goal is to schedule it to go live at 9 am on Thursday, I am not meeting that today. I’m sure everyone reading this will understand.

So now I sit down and think what I can say today that might matter? What does my current situation look like? I could write about the patience it takes to be a CarePartner especially as we are waiting for his medical team to get things together and change his DBS battery. I could write about my frustration with what appears to be his stubbornness as I try to encourage him to do what the Speech Language Pathologist says to improve his swallowing. Honestly though, today I have too many things to do and too little time to do them, that’s my current situation. But I will struggle through and get them done because that’s what all of us living as CarePartners do. We don’t have any other choice.

When I started posting this blog, I was finding the time to write three times a week. I was also volunteering twice a week at a local museum and taking daily walks. Looking back at those words, I can see my life as a CarePartner was complicated, but it was nothing compared to where we are now. If only I had known. And that is why I always tell everyone in the early stages of this journey to do what you can while you can, you never know what your future will bring. Find your “me time” whenever possible because you won’t always have the same opportunities. And the further we go on this journey, the more difficult it becomes for both of us.