Patience is a vital tool for People with Parkinson’s, it’s even more vital for those of us trying to care for them.

My husband appears to be in sloth mode today, everything with him is in slow motion, whereas I have things that need to get done. Standing by and watching him struggle with tasks that I can do quicker and easier is driving me crazy. But I know that whenever I start doing something for him, it takes away from his abilities to care for himself. I want to be patient, but some days are simply harder than others.

The “Brady” twins are targeting us today. That’s bradykinesia and bradyphrenia, or slowness of movement and brain functioning. My husband openly states that he can’t do more than one thing at a time and that one thing must be done at a snail’s pace sometimes. Parkinson’s has decided his brain is going to process commands more slowly and the messages move through his body more slowly and finally he must follow each one in detail. I feel for him because it’s definitely not his fault he no longer has autonomic movement making everything he does challenging.

Which brings me back to my dilemma, finding patience on a sloth mode versus long to-do list day. First step, I take a deep breath and re-evaluate the list taking off anything that isn’t a priority. Second step, I must take care of anything that needs to be done with or for my husband. Third step, help him get him settled somewhere and go to work with whatever time and energy I have left. Fourth step, it’s time to celebrate what did get done and take a rest after another successful day in PD land.

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