Attending medical appointments with your loved one may lead to unexpected benefits for you.

I know that I have written about the importance of accompanying your Person with Parkinson’s to all of their appointments so you can be ready to support them in their journey, but I don’t think I have mentioned that it can actually lead to a better life for you. This happened recently for us when  I stumbled across a new treatment for things that had been troubling me for ages. Bowel issues are a constant in Parkinson’s and constipation is something I struggle with too, thanks to a faulty thyroid gland. I also learned recently that I inherited high cholesterol from my mother. At a recent visit with a member of my husband’s medical team, he was told to try Psyllium Fiber for his digestion. In my search for the best Psyllium options I found that not only is it good for him it is also good for what ails me. It has been proven to help with chronic constipation and lowers high cholesterol. So, we’re both using it daily with pretty good results so far.

In the past I have mentioned that my husband’s diagnosis encourages me to plan and cook healthier meals and to exercise more. We work to incorporate these into our daily life and it definitely makes a difference. A visit to get blood work done earlier this week also reminded both of us of the importance of hydration. The phlebotomist was having a difficult time drawing his blood and mentioned that it was really thick. We both ramped up our water consumption that same day.

It’s so easy to get caught up in the negative aspects of this disease but in the long run, which PD is turning out to be, we are both more health conscious than ever before. I know that I am aging better thanks to suggestions for him from his medical team. One thing I hope his doctors understand is that his care is dependent on my health. Whenever they can share something that is good for both of us it’s a real bonus. I need to remember to mention this and thank each of them for the support they give me at his next appointment. Perhaps they’ll do it more?

Parkinson’s and Pro-biotics can be a useful combination when trying to manage gut issues.

My husband recently had a bout of intestinal upset accompanied by about 2 weeks of intense diarrhea. We worked to keep him hydrated and, since he never exhibited a fever, he didn’t visit urgent care until it was too late for them to be able to detect what was causing the problem. As things started to settle, his caregiver mentioned that probiotics might be helpful in getting his gut back to a normal state. Knowing that my husband is not good at eating lots of green vegetables nor does he like yogurts or pickled foods that might contain live cultures, I decided to try a probiotic pill. We spoke with his neurologist about this and she agreed that it couldn’t hurt.

Let me back up a bit to say that before this episode my husband used Miralax regularly to keep things moving. He went off it when the diarrhea hit and hadn’t started it again. The probiotic we chose was a generic version from the local drug store. He took one a day with his breakfast. We saw a change in his movements within about a week, the consistency was easier to control and he was more regular. We decided to try adding the Miralax back into the mix, but it seemed to make things worse so are now stopping the laxative to see what the probiotics can do on their own. 

Studies have been done on the gut microbiome and how it influences Parkinson’s Disease. I really didn’t look into that topic choosing to focus instead on the impact to his bowels and issues with constipation. So far things are looking good, if he also gets better absorption of his carbidopa levodopa, then that will make it even better. Anything that makes our daily lives even a little bit better is a win in my book.

My information for this blog came from observing my husband’s experience and the following two websites: https://www.apdaparkinson.org/article/probiotics-and-parkinsons-disease/ and https://www.nccih.nih.gov/health/probiotics-usefulness-and-safety. I am not advocating for the anyone to use Probiotics but do encourage everyone to research this topic.