Sometimes I find it difficult to believe what my husband is saying about the progression of his illness. I think that he downplays the challenges to protect me or, perhaps, deny they are actually happening. It is a good thing that I can see the tremors and recognize the problems they bring as it gives us a place to start the conversation. I do worry that he may not be as open about the “hidden” symptoms and can only depend on him to share if (or when) they happen.

There is so much going on in his body that I cannot possibly comprehend, I can only be here to provide the support he is willing and able to accept. I need to remember that I am doing my best every day to meet his current needs and keep the doors of communication open for when things might change. And, above all, I need to trust that he is being open and honest as we travel this journey together.