When you are struggling to be patient with the challenges PD brings for your partner, remember to be also be patient with yourself.

As my husband will tell you, patience has never been my strongest virtue, waiting for anything is a challenge for me. So, of course, one of the dominant symptoms of his diagnosis with PD has been stiffness and rigidity which slows down everything we try to do. I get to practice my patience with this disease on a daily, no make that an hourly basis, and I often come up lacking.

Why is it that I remember my failures and frustration so much more clearly than my successes? I can tell you that I was short with my husband at least twice yesterday, for things outside of his control. Even when I don’t say the words, I know my body language can be unkind. What I don’t recall as well are the times when I smiled at him, hugged him and gave us the time needed to finish the task. I don’t remember when I waited patiently or planned extra space into our daily routine, knowing that it would be needed.

I have often said that I was put on this earth to learn patience. As we move forward in our journey with Parkinson’s, I believe that I am especially supposed to learn to be patient with myself. I need to remember that, just as my husband struggles with this diagnosis, I struggle with the role of CarePartner. It is different for each of us but can be equally challenging. I am always attempting to do my best, and that is all I can possibly do. While I may not always be the perfect Caregiver, I can still strive to be the perfect loving Partner for my husband and remember to give myself credit for doing that well.

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