Travelling with your partner will bring new challenges.

We have always enjoyed travelling to experience new places and people. Unfortunately, that is one of the things that Parkinson’s seems to be taking away from us. It has become increasingly difficult for my husband as he tires so easily. Travelling, no matter the mode, often means he has to focus energy on navigating noise and crowds in unfamiliar territory. Daily schedules, so important for someone with PD, are disrupted and dietary changes bring their own challenge. Regardless, we are planning a trip to Hawaii in September to celebrate our 20th anniversary, albeit a year late, and my hopes are high we will have a good time.

In order to make sure things go smoothly, I am trying to handle as many of the basic logistics in advance so all he has to worry about are his physical challenges. I’ve asked for a wheelchair escort from the ticket counter to the gate at both airports. I requested an ADA approved room when making my reservation. We are going back to a resort we visited before so we know the area and what to expect while we are there. We’re getting an ocean view room so when he is tired, we can rest on the balcony and watch the whales playing in the waters off the island. We only plan to stay a few nights which minimizes the overall impacts of being away.

Now comes my biggest challenge, helping him acknowledge that this can go easier if he is willing to accept assistance along the way. He hasn’t been open to a walker or wheelchair before, will he understand that the need isn’t just for him but also for me? I can handle shuttles, ticket counters, luggage, carry-ons, whatever other hassles travel presents, but not if I am also having to keep an eye on my husband to make sure he is okay. I want to enjoy my time in Hawaii rather than arrive exhausted and spend the entire vacation trying to recover only to go through it all again on the way home. I guess I’ll find out in September.

One thought on “Travelling with your partner will bring new challenges.

  1. I, too, love to travel. Unfortunately, now that we finally have the time/money/freedom to do so, it will be ‘Traveling with PD’. I keep telling myself to treat myself as I would my best friend. I would tell my best friend, “You can’t walk twelve miles a day sightseeing anymore. Maybe traveling with PD means more trains/buses/Ubers/scooter rentals. Maybe it means a walker, or wheelchair to make things easier. But, it doesn’t mean staying home! It just means you’ll be seeing things from a different perspective.” We’re looking forward to a big trip next spring. And, one thing is for sure… wherever we go, there will be people who live and function there who also have PD. Maybe we should start some sort of travel/trade club… we take PD Sitters along like some folks take Grandma along so the grown-ups can have a little free time!

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