Just when I think I’ve figured things out, something new happens. Parkinson’s is a never ending journey of learning and acceptance for me as a CarePartner. We met yesterday with the care manager from the agency who provides our in-home care to update my husband’s care plan. We started with these folks three years ago yet so much has changed. I don’t always see it, the changes come on and get assimilated into our daily lives. I accept the new challenges as they come and figure out how to move forward.

The woman from the agency was surprised to see transfer poles in our home. We discussed his activities of daily living and many thing needed to be updated. She didn’t know that my husband was using his walker full time now, according to her paperwork he was using a cane. There have been changes due to balance issues. When we originally met his needs were definitely less intense, I hadn’t realized how things have progressed.

This journey is unique and unpredictable. I never know from one day to the next whether we are going to have a good day or a bad day. I wake each morning and prepare myself for whatever may come, it’s all that I can do. If my husband can face whatever challenges PD brings to him today, then surely I can accept whatever that means for my role and stand alongside to support him.